A message from Tiff

First of all i want to thank everybody for all their thoughts and prayers. we feel the effect of all of that and we are glad to have such supportive ffriends and family! i just kinda wanted to tell our sweet babys story from the begining and give a little more of the medical side of it:) stephy has already done an amazing job at telling the story and thanks to her for putting this together!
Rj was born friday the 22nd at 12:31!! since sagie was so big we wanted to play it safe and do a c section. when she was pulling him out he still got stuck and the incision still ripped, she said it was a very very good thing we did it this way. rj was a beautiful healthy baby boy until monday at 1 in the morning. he was in the nursery and the nurses noticed something was definately not right, he stopped then again at 3 he did the same thing, he was having seizures. they rushed him to the NICU automatically then called me and aaron. aaron ws the one that answered the phone and i just knew that by the look on his face it was not good. we went down there and they were automatically hooking him up to anti seizure medicine which should have taken effect immediately, but it took about ten minutes which is not normal, poor little guy was just exhausted. at this point is when me and aaorn lost it. it is the hardest thin in the world to not be able to hslp your baby and see them there like that. once he calmed down he immediately got a blessing. me and aaron were there all night with him then
*in the morning he went to get his cat scan. it thankfully came back clear.
*then they did a LP to get his spinal fluid and they found bacterial meningitis. this could be fatal to newborns.
* then he was scheduled to get a mri a few hours later and they found he had a stroke in the area of the brain that controls his motor functions.
* the doctors sent his case to primary childrens and they have been in touch with them the whole time.
after he got all these tests done there was nothing we could do but wait wait wait! that is what killed us is not having any answers. with our baby boy having srizures and there is nothing anybody can do about it was just killing us.
we both lived in the NICU until i was finally released yesterday. now is when the fun part begins. RJ will be in the hospital for a minimum 2 weeks, so the hardest part is going to be splitting time with our two babies. being there for sage, and also going to be by rjs side. i will try my hardest to keep you updated and be in contact with stephy and she will add stuff as well. again thanks for all your love prayers support and help!
love tiff, aaron, sage, and rj

4/27
today rj is getting his central line put in. his poor veins keep colapsing and so they had to go with this option, but in the long run it is better for him. the iv goes straight to his heart, and it is very effective. it has been a very lengthy procedure about 3 hours just so they do everything right.
he is getting another LP to get more spinal fluid to see if they are getting rid of the meningitis, which they finally found is waht is causing the seizures, so hopefully if they are doing it right his seizures will stop!
it is a little easier because were starting to get answers, but there is stiill so much they dont know. like steph said he got an eeg done, and that showed abnormal activity which they believe is from the meningitis. like steph also said he is able to have mild through a feeding tube now so he does not hav eto be just on the iv.
we have gotten him to smile a bit but he has been asleep and sedated every since he got down to the nicu. all these pics you ahve seen withi his eyes open are from before he was in there. his anti seizure medication makes him tired so he may just sleep til he comes home! again thatnk you for everything everybody!
love tiff, aaorn, sage, and rj